Just to keep everyone posted, Trenton had an MRI yesterday and after the doctors reviewed the scans they feel that although there was a slight growth of the tumor and of the cyst on the tumor that overall he is stable. Sometimes it is difficult for them to measure the tumor in the same exact manner each time so their overall view of the tumor still shows that the tumor is less enhanced than October which would indicate that that his current meds are working. At this point we will stay the course with his current treatment on this experimental drug. Trenton’s overall health is very stable at this point and as always he continues to amaze me each and every day with his strength and abilities.
As we approach four years since Trenton was diagnosed I take time to reflect on all that he and this family has gone through. As I have said so many times the gift that Trenton has given this family is amazing. Many of us float through life looking for meaning, for understanding, for purpose. We take days, weeks, months, even years for granted as a given. We lose outlook and focus on individuals, friends, even family as we get caught up in our day to day lives. During the first two years of Trenton’s diagnosis our family seemed to just keep our heads above water so to speak. Having young children is work, but having a young child with health issues is more difficult. It has been the last two years that I can truly say I have experienced what true meaning there is to this gift called life through my experiences with Trenton. Even over the last few months I have learned so much and how amazing God and faith can be. Knowing that Trenton is ill, knowing that his time may be short but yet watching this child love and appreciate all that he is given with such passion is beyond words. Those who get the opportunity to really know him and be with him will tell you that he changes you in ways that you cannot imagine. Every day he reminds me of how great life is, you just have to slow down and appreciate it. He giggles and gives such huge hugs and kisses and praises over the small things.
Every night he tells me this was the best dinner ever and he is truly convinced it is. One evening my oldest son said “Trenton you say that every night, how can it always be the best dinner ever?” Trenton’s reply was simple, “Bryce, it really just is”. I thought about that simple statement through the eyes of a child, “It really just is”. For Trenton he appreciates each day, to him everything that day is the best, and every new day it just gets better, what an amazing outlook, something we should all try. I have gained a new respect and love for so many things keeping that outlook in mind. As we continue on this journey I continue to pray for Trenton to have the opportunities that so many of us take as a given, our health, our ability to grow up, our ability to enjoy a lifetime of all that God has created. Time will tell what his future will hold, but for today I will enjoy him and all that he gives me. Thank you all for your continued support and prayers.
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